So first it was Diabetes in January, now Eosinophilic Esophagitis!

music-city-missy

Well-known member
of course the EE is a fairly new condition and seems to be most common in babies and children and with men having it more than women. But I got it.

Basically it's an allergic esophagus. Eosinophilic white blood cells build up in the esophagus because of inflammation caused by allergic reaction. The inflammation and build up of white blood cells narrow the esophagus causing problems swallowing and sometimes even impacting food. Some of my attacks are such that I can try to relax and take a sip of liquid and get the food down. But then there are times (like my company's holiday party in December) that it completely blocks or shuts and nothing will go down, not even saliva and it can last anywhere from 3 to 5 hours.

Anyway, they don't know for sure if food is the allergen or if it's environmental. And if it's food, no one agrees on what foods trigger it. Plus they don't know if it triggers the reaction when you eat the food or days later. There is no cure and it doesn't go away. So it's just something you deal with. For now, they dilated my esophagus, something that might have to be done repeatedly over the years. And I am doing two puffs of Flovent inhaler but squirting in my mouth and swallowing, not inhaling. Wonderful after tastes!

So we all know the foods diabetics avoid and then between all the lists of foods they THINK trigger EE - gluten, grains, proteins, milk & dairy, soy, eggs, beans, seafood & shellfish, beef, poultry....

I guess I can always live on leafy greens, cruciferous vegetables, eggplant, squash, celery, cucumbers, tomatoes, and I guess a few sweet peppers and carrots here and there.

 
Oh, dear! This sounds like a real challenge. Can you try an elimination diet to find the triggers?

 
Larry has had his esophagus dilated twice already. It's a pretty non-agressive procedure and

nothing hurts afterward.

Good luck, sweetie. I'm SO glad you got to try your ALL PORK PIE before some food got taken away from you.

 
I plan on loosing this weight, getting the diabetes in 'remission' but not giving up things

As Julia Child said - everything in moderation!!!

 
I really don't have it often enough to let it control me - tip for anyone that has it

or need to have it dilated very often. As I said, I have had this for 20 years so if I have managed it this far.... The only reason I did this was since I self diagnosed and treated myself, they didn't know what it was for sure and wanted to make sure it wasn't cancer.

BTW - for anyone that has this or esophagial spasms, if food becomes lodged, take three small sips of ice cold whole milk (or cream). It will not seem like it is working and you will feel like it's coming back up like everything else but after the third sip, just sort of breath deep and try to swallow and all of a sudden it will clear but will hurt as it clears. And BAM, it's all cleared up. After years of no solution, I found this about six months ago and it has worked the two times I have tried it. First time was in about the fourth hour of an episode. Second time was after the embarrassment at my company's holiday party.

 
I was diagnosed with it several years ago, after being dialated every 6 months. The inhaler

has been very effective when I have a episode. I try to always drink with my food. Good luck, with turning the diabetes around. I did, stopped all white and no sugar except fruit. I do eat sweets very occasionally, It is easier to keep the sugar out of my system because when I junk it two to three days of getting it out of my system and stopping the sugar cravings. YOU CAN DO It!!!!!!!!!!!

 
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